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PEDIATRIC EPILEPSY RESOURCES

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The Epilepsy Foundation Indiana provides seizure first aid training, school and community education, advocacy, and family events. Their 24/7 helpline (1-800-332-1000) connects families with immediate support. This is a go-to resource for practical education, advocacy needs, and crisis questions. 

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Epilepsy Alliance America offers national-level programs, including virtual support groups, webinars, toolkits, and scholarships. This resource is ideal for families seeking flexible, online support or national advocacy efforts. 
 

The following are family resources:

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INSOURCE specializes in helping families navigate the school system. They provide training and support for IEPs and 504 plans, ensuring children with epilepsy receive appropriate accommodations. This is the best resource if your child needs educational support or advocacy in school settings. 

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Family Voices is a family-led nonprofit that helps parents navigate healthcare, insurance, and special education. They offer one-on-one peer support from other parents of children with special health needs. This is especially helpful for families new to the healthcare system or needing guidance on IEP/504 accommodations. 

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